Caregiving in itself can be difficult. Ones desire to help, nurture and support a loved one at end of life is daunting. Most of the time, caregivers have made a decision to care either by desire, or necessity. In any case, unless they care for themselves, there is little they can do for their loved one.
While the death of a loved one is one of life’s most difficult times, the holidays can compound our sense of loss and isolation. When we're experiencing the pain of grief, the last thing we want to do is participate in any kind of holiday celebration. We want the pain to end, and we can’t imagine being around others at a time that is supposed to be full of joy when we are so burdened with sorrow.
This is a normal way to feel, but since we can’t cut out the calendar from late October through early Januaryof the next year, it might be helpful to modify our plans, and most especially to take good care of ourselves.
Consider the following suggestions:
When I began home hospice with JourneyCare a year ago, I did not expect I had much time left due to my end-stage COPD. One of my top concerns was my pitbull, Coal. I rescued her from a shelter as a six-month-old puppy, and she has been my constant companion for the last eight years. I hated the idea of having to give her up due to my illness, so I hired a dog walker. (Luckily the dog walker fell in love with Coal and agreed to adopt her when I am no longer here.)
In my family of origin, I saw illness from an early age. My sister is developmentally challenged and she also has severe epilepsy. My father was diagnosed with Parkinson’s disease when I was in my early 20s. This was a prolonged illness that took its toll over the last 20 years of his life. My whole life I witnessed my mother as the caregiver for my sister, and then later for my father. After my father passed, my husband and I found an excellent group home for my sister. We did this in hopes to give my mother a much-needed break from the role of caregiver, and to allow my sister to live as independently as she possibly could. Finally, I would have my mother back as her relaxed and fun-loving self. Finally, she would be free to have more enjoyment and freedom in her life!
Something unexpected occurred, however.
I am so blessed to be working here at JourneyCare. My first two months have been filled with one amazing day after another. I am humbled by the heartfelt work I have seen firsthand and I am so proud and thankful for everything I have experienced thus far.
I joined JourneyCare in December, 2015, as Senior Director of Service Excellence. In this role, I’m collaborating with virtually every aspect of the organization; with a focus on developing a culture filled with programs and values and a walk-of-life that prepares us to deliver service excellence filled with magic moments.
We all have unique journeys to share that somehow guide us to where we are today.