For massage therapists who care for hospice patients, the work we do is full of ongoing lessons and gifts. I’m continually reminded what a privilege it is to meet and participate in some small way in the lives of our patients — such diverse, interesting, wonderful, ordinary and extraordinary people. There is a bond that develops with physical touch through the understanding that as their massage therapist, I am there to make them feel better. They guide me to the best way to help them and I am there to listen and respond.
I’ve had the honor of working with many patients with ALS (amyotrophic lateral sclerosis). Due to the challenges that befall these patients, massage is a service that often makes good sense. When their muscles stop working as they once did, we can help stretch and massage those muscles to make them feel better for a little while. One such patient gave me delightful gifts of imagination and laughter, and lessons about an unfailing positive attitude and outlook that I will never forget.
For National Hospice and Palliative Care Month, JourneyCare is celebrating our thoughtful and caring staff and volunteers, who provide comfort and exceed expectations to make the holiday season joyful for our patients and their families.
As a Jewish Care Ambassador for JourneyCare, I’ve often thought of patients in our care during the holiday season and have felt badly that some of them, due to their advanced illnesses, are unable to enjoy the holidays to their fullest extent. This year as December begins, patients in our Jewish Care Services program will celebrate Chanukkah beginning the evening of Sunday, December 2 continuing through Sunday, December 9. Chanukkah is called the Festival of Lights, which is considered a joyous holiday and meant to remind us of the golden menorah in the time of the Temple with the miraculous jar of oil that lasted eight days.
In honor of National Hospice and Palliative Care Month, we are celebrating the hospice and healthcare workers who hold the hands and hearts of our patients and their families every day. In tribute to the physical, emotional and spiritual work they do, each blog this month will bring you an up close look at how they bring compassionate care to patients and families in extraordinary ways. We hope you will be inspired by these stories which shine the spotlight on these everyday heroes.
As a music therapist for hospice and palliative care patients, I feel incredibly grateful each day that I have the privilege to do this unique work. This November I reflect on National Hospice and Palliative Care Month, and realize I can honestly say that I absolutely love my job and the work that we do here at JourneyCare.
In my journey as a music therapist, I experience so many touching moments with our patients. But what makes my work especially worthwhile are the “WOW” or breathtaking moments. And sometimes, when I least expect it, a “nice” visit can become one of my best.
I look forward to our Tree of Lights celebrations every year. My personal experience with grief and loss has been eased by participating not only as a staff member, but a grieving person in my own right. Let me share a story with you ...
In the past 18 years, I have had the privilege of providing grief support to family members of hospice patients as well as members of the community at-large. Little did I know when I began my connection to JourneyCare as a volunteer over 20 years ago, I would become part of one of the most compassionate organizations that serves people at the most critical juncture in their lives. What was once a small agency now reaches across 10 counties in the Chicago region.
For World Hospice and Palliative Care Day, Nurse Katie Fernandez explains the team-based approach care patients and their loved ones receive through hospice.
I have been working with hospice patients for 15 years. My role as a hospice nurse is tightly woven into the team I work with: physicians, other registered nurses, certified nursing assistants, social workers, chaplains and volunteers. We collaborate as we work together to manage the needs of those we care for. I am deeply grateful to work with committed professionals as we apply our strengths to soothe the physical, emotional and spiritual struggles that patients and families are dealing with.
It's Health Unit Coordinators Week (August 23-29) and JourneyCare recognizes the importance of our Team Care Coordinators, who help keep our CareCenters running smoothly for our staff, patients and families. Thank you to all our TCCs! We appreciate the hard work and compassionate care you provide every day of the year!
I love working as a Team Care Coordinator for JourneyCare at The Pepper Family Hospice CareCenter. It amazes me the negative stigma that hospice has with the public. I am always confronted when I tell someone where I work, “Oh, I could never do that.” As for me, I could not imagine doing anything else.
Our clinical team cared for a wonderful hospice patient in McHenry County who lived in a little wooden cabin house, directly on the lakefront. Every person on our team said it was a dream house, directly on the water with a sandy beach and a fire pit right outside the front door.
The only thing was, Gabe was dying and alone inside this home. He no longer could even walk down the steep lawn to the lake anymore, not without assistance.
Tim serves as our Chaplain at JourneyCare’s inpatient units in Glenview and Arlington Heights. Tim joined our JourneyCare staff last fall after having volunteered for nearly fifteen years. He previously spent many years in the financial services arena until he had a calling to Chaplaincy and completed his Master’s degree at Loyola University in Chicago.
Prior to joining JourneyCare, he served as a Chaplain at Condell Medical Center in Libertyville and Good Shepherd Hospital in Barrington. Tim says he has the best job in the world and gets to laugh, cry, and pray with people every day.
I am often mindful of the quote by Albert Einstein, “I have no special talents, I am only passionately curious.” I feel that there is a driving force inside of me to help others, to relieve suffering, not as a noble endeavor to call attention to myself, but because I have been given so much. I want to use my talents and opportunities to help relieve the burdens of others. This is what I strive to do.
What is a memorable patient story for me? My husband’s dear friend of many years was diagnosed with a rapidly progressing form of ALS at age 62. He and his wife were part of a group of friends who had stayed in touch for many years, through many changes. His daughters were my children’s babysitters.
This is my 29th year as a hospice social worker, and my 26th year with JourneyCare and its legacy hospices. I wish I had a dime for everyone who has ever said to me, “Gee, your work must be so depressing …” I would have a truckload of money and I might have retired by now! But I think it’s better this way: I love what I do, I have never found it depressing and I’m in no hurry to retire from it.
Being a hospice social worker demands a very full toolkit of both clinical and non-clinical skills. Sometimes people have misconceptions about what a social worker is and does, so when I walk into a patient’s home for the first time, I am very conscious of the need to quickly establish a rapport so I can explain my role on the team and patients and their families begin to share freely with me.