This hospice, this wonderful, caring, abiding presence in all our days, humbled me in 1979. It continues to do so, even as I express my gratitude to it as a superb caring entity, which is superbly represented by each and every one, a caregiver, directly and indirectly.
In 1979, Paul Wise, a new patient to me, informed me in his initial visit that he had recently lost his wife. Later, after his physical examination, he asked if I knew the name Cicely Saunders. My first thought was, "His wife has just died and already he wants me to know of his new lady friend." But fortunately a second thought came in, Isn't she an English woman? Something about "Hospice" or some such? Care at home at the end of life?
If you have read my previous posts here at Your Best Day, Today, you know that my experience with Midwest CareCenter has been based on the death of my 48 year-old husband, Tom. He died too young but, as I have said so many times before, the care he received at Midwest CareCenter turned a terrible thing into a comfortable, loving event. But I actually had experience with hospice in a completely different setting when my mother died in 2006.
This won't be easy. This whole thing. This whole my loved one is dying thing. But if you are considering hospice, are working with hospice now, or have worked with hospice in the past, you already know this. When a loved one is dying, everything is hard. Living day to day is hard. Even making it through the day can be an excruciating endeavor. But here's the thing. Although inviting hospice into our lives can't take the pain away, it can make things easier. And really isn't that what we are going for here? A little more ease? A little more grace. A little breathing room?
My name is Marlene and it was about five years ago that Midwest Palliative and Hospice Center was introduced to me. My husband, Tom, had been battling terminal cancer ― a glioblastoma located in his spine ― for a year. Surgery, radiation, physical therapy, hospital stays, blood tests, and numerous cycles of various chemotherapies defined that year but the cancer kept winning. During that year I was fortunate enough to be his full- time caregiver.