I received an art therapy referral for Brittany, a 19-year-old on our pediatric hospice services living with a rare cancer that affects her connective and soft tissue. Ironically, the referral specifically stated she is not interested in making any art, but loves makeup.
The word “art” can be off-putting to a lot of people and can even prevent them from accepting art therapy services, so I was looking forward to working with someone with such a unique request. I reached out to Brittany’s mother to schedule a visit. Her mother reiterated early in our conversation that Brittany did not want to make any art, only makeup. I explained how I would respect Brittany’s wishes, that makeup is a creative outlet and our ultimate goal together is to use this creative expression to help support Brittany.
It's Health Unit Coordinators Week (August 23-29) and JourneyCare recognizes the importance of our Team Care Coordinators, who help keep our CareCenters running smoothly for our staff, patients and families. Thank you to all our TCCs! We appreciate the hard work and compassionate care you provide every day of the year!
I love working as a Team Care Coordinator for JourneyCare at The Pepper Family Hospice CareCenter. It amazes me the negative stigma that hospice has with the public. I am always confronted when I tell someone where I work, “Oh, I could never do that.” As for me, I could not imagine doing anything else.
Moments matter. This phrase has been on my mind as I reflect lately on my work as a music therapist and as a hospice worker. From a simple smile and “good morning” to the woman sitting alone in her chair, to an entire team coming together to surprise a patient with a birthday party, I’ve seen how much this rings true.
“Do small things with great love.” — Mother Teresa of Calcutta
That simple quote from Mother Teresa popped into my head as soon as the barista at the little coffee shop I like in Evanston handed me the cup of cappuccino. Using nothing but swirls of perfectly foamed milk, I saw he’d painted a panda bear on the surface of my drink. When I exclaimed with delight and he smiled back at me, we shared a moment of joy.
Our clinical team cared for a wonderful hospice patient in McHenry County who lived in a little wooden cabin house, directly on the lakefront. Every person on our team said it was a dream house, directly on the water with a sandy beach and a fire pit right outside the front door.
The only thing was, Gabe was dying and alone inside this home. He no longer could even walk down the steep lawn to the lake anymore, not without assistance.
“What are your goals?” This is a question we ask all patients who are in our care. What can we do for them? What do they want to achieve? For our patient Fanny, her goal seemed impossible. But at JourneyCare, we never turn a patient away and we always strive to find a way to make their goals happen - even if it takes some creative thinking.
I began my odyssey with JourneyCare some eight months ago, after my fifth experience with hospice for family members. Having recently retired and looking to give back – but uncertain if volunteering at hospice was right for me – I discovered the We Honor Veterans program and found a perfect fit.
Our family's JourneyCare experience was exceptional. We discovered services beyond skilled nursing care, such as art, music, massage and Reiki therapies, pet care, patient visitation and, of course, We Honor Veterans. Many of these integrated services are provided by a host of passionate volunteers.
The We Honor Veterans program recognizes current and former military members for their service and assists them in accessing benefits they are entitled to receive. JourneyCare is one of the only nonprofit hospices in the Chicago area that is recognized by the National Hospice and Palliative Care Organization (NHPCO) as a partner in the We Honor Veterans program. JourneyCare also sponsors a Veteran Volunteers Advisory Council that engages veteran-centric event planning, training, and educational opportunities.
My dog Sydney and I have been a pet therapy team with Journey Care for the last two years. When people think of therapy dogs most picture a little pup who will come lay quietly in their lap or on their bed. But when we arrive we can see the surprise in their eyes; Sydney is 80 pounds of labradoodle. Her size makes it easy for patients to reach her from their chair or bed. And people have shared that having a big dog lean on you is like getting a wonderful furry hug.
On Sunday, April 29, I had the pleasure of attending the annual Mitzvah Day program at Congregation Beth Tikvah in Hoffman Estates, one of more than 400 communities served by JourneyCare. A Mitzvah Day is a day in Jewish communities when congregation members come together to perform a wide variety of deeds that benefit their community. Many congregations in our service area have these annual programs.
The focus of this particular Mitzvah Day was inspired by a Jewish Care Services patient we cared for last year in our Marshak Family Hospice CareCenter in Glenview.
I'm a hospice volunteer who offers companionship and support to patients, but I felt anxious about visiting a hospice patient with memory loss. Would I make a connection that could provide comfort? Donna became my first teacher.
Donna, not her real name, was in her 70s, living in a nursing home, with advanced Alzheimer’s disease. She appeared short with a slight frame. She sat in a reclining chair in the television room, which was sparsely decorated. She had pads on her hands to keep from scratching her skin.