As a hospice lead volunteer coordinator, I have the privilege of working with amazing people who do amazing things every day. These real life superheroes spend countless hours with our staff, patients and families, making a real difference in the final moments of someone’s life. Their super power is their ability to transform lives through compassionate care.
Caregiving in itself can be difficult. Ones desire to help, nurture and support a loved one at end of life is daunting. Most of the time, caregivers have made a decision to care either by desire, or necessity. In any case, unless they care for themselves, there is little they can do for their loved one.
Chanukah (Dec. 24-Dec. 31) is a holiday rich in Jewish history and traditions. Some refer to it as the Festival of Lights due to the lighting of Menorahs and the miracle relating to the oil. In the time of the Holy Temple, one jar of oil lasted eight days. This is also the reason for why the holiday lasts eight days.
This year, while I enjoy celebrating with family and friends and eating the symbolic foods of the holiday, including potato latkes (pancakes) and sufganiyot (fried donuts), I will remember a patient of mine who was a Holocaust survivor.
Several years ago, as part of a corporate walking challenge for hospital employees, I invited a Buddhist monk, Bhante Sujatha, to lead a group in a meditation walk at a beautiful nature preserve labyrinth. The labyrinth is circular in shape with winding paths that draw you back and forth until eventually you reach the center. It is said that the back and forth motion engage both sides of the brain and create a sense of calm, somewhat like rocking a child in a cradle or gliding through space on a swing. Because so many of us were making our way through and we all began at the same time, we regularly needed to move aside, as people passed us on the way back from the center.
A little girl giggles with uncontrollable excitement at seeing Santa walk down the stairs...
A pre-teen boy anxiously awaits as the announcer calls the next Bingo card selection...
And, a toddler smiles as she clutches her newly acquired baby doll...
What do all of these things have in common? The annual JourneyCare All About Kids Program Holiday Party! With the theme of “Walking in a Winter Wonderland,” nearly 200 children and their families from our All About Kids palliative care and hospice program were recently treated to food, fun, presents, and a special visit from Santa at the Stonegate Banquet and Conference Centre in Hoffman Estates.
While the death of a loved one is one of life’s most difficult times, the holidays can compound our sense of loss and isolation. When we're experiencing the pain of grief, the last thing we want to do is participate in any kind of holiday celebration. We want the pain to end, and we can’t imagine being around others at a time that is supposed to be full of joy when we are so burdened with sorrow.
This is a normal way to feel, but since we can’t cut out the calendar from late October through early Januaryof the next year, it might be helpful to modify our plans, and most especially to take good care of ourselves.
Consider the following suggestions:
Today on Black Friday, many of us are searching for the very best bargains we can find on our holiday gifts, but I hope many of you will also join me in extending the “thanks” and the “giving” of yesterday a bit longer.
Since joining JourneyCare early this year, this November is the start of my first holiday season as President of the JourneyCare Foundation. This month is also my first time celebrating National Hospice and Palliative Care Month. Both events have created a valuable opportunity to reflect on the amazing care our JourneyCare teams deliver to our patients and their families every single day.
Thanksgiving is a wonderful time to gather with friends and family, and reflect on why we are grateful. The holiday is also a time to remember loved ones who are no longer with us. This year let’s honor those we have lost by doing something special.
As you join your family and friends around the table this year, share what brings meaning and joy to your life. Allowing your family to understand what quality of life looks like for you could help them in the future if they are asked to make medical decisions on your behalf. If we don’t have these conversations, our families may be forced to make difficult decisions without having any guidance from us.
November is my favorite month. Not just because of the leftover Halloween candy, my birthday and Thanksgiving, although they are a part of it! November is National Hospice and Palliative Care Month, and on November 11 we observe Veterans Day. This is a beautiful thing to me as it combines two of my passions.
Take a moment to recall how you became part of our JourneyCare community.
Maybe you heard of us at a community education event on advance care planning. Or you learned about JourneyCare through a friend or neighbor who was touched by our amazing team of employees and volunteers. Or maybe you simply stumbled upon this blog and became inspired to engage.
However you joined our JourneyCare community, it was likely thanks to word-of-mouth and personal experience. As a friend of JourneyCare today, you have a personal understanding of the exceptional care and support we provide for patients and families dealing with serious illness and end-of-life issues.