For National Hospice and Palliative Care Month, JourneyCare is celebrating our thoughtful and caring staff and volunteers, who provide comfort and exceed expectations to make the holiday season joyful for our patients and their families.
As a Jewish Care Ambassador for JourneyCare, I’ve often thought of patients in our care during the holiday season and have felt badly that some of them, due to their advanced illnesses, are unable to enjoy the holidays to their fullest extent. This year as December begins, patients in our Jewish Care Services program will celebrate Chanukkah beginning the evening of Sunday, December 2 continuing through Sunday, December 9. Chanukkah is called the Festival of Lights, which is considered a joyous holiday and meant to remind us of the golden menorah in the time of the Temple with the miraculous jar of oil that lasted eight days.
I look forward to our Tree of Lights celebrations every year. My personal experience with grief and loss has been eased by participating not only as a staff member, but a grieving person in my own right. Let me share a story with you ...
In the past 18 years, I have had the privilege of providing grief support to family members of hospice patients as well as members of the community at-large. Little did I know when I began my connection to JourneyCare as a volunteer over 20 years ago, I would become part of one of the most compassionate organizations that serves people at the most critical juncture in their lives. What was once a small agency now reaches across 10 counties in the Chicago region.
Santa and Mrs. Claus have a special place in their hearts for JourneyCare kids, all year long! And they both are joining JourneyCare to host Christmas in July in the south suburbs this summer!
It all started over a cup of coffee and a conversation I had with Nancy Sullivan. Nancy was ready to volunteer for JourneyCare and be a care companion for our patients. Nancy shared with me that she is the wingman to a very prominent historical figure … Santa!
Nancy explained that her husband, also known as Steve Sullivan, spent much of the past Christmas season visiting our CareCenters and pediatric patients at their homes. It was obvious bringing holiday joy is their mission, and they were happy that JourneyCare gave them the opportunity to help in this way.
Camp Courage is JourneyCare’s bereavement camp and activities for children and teens, ages 6-13, who are grieving the loss of a loved one.
When I took it on, I assumed being a Camp Courage volunteer would be tough. I knew that spending a week with kids ages 6-13 who had recently experienced a significant death would challenge my emotional wherewithal. Given my career working with the juvenile justice system and the skills I developed in that role, I decided I could handle it. But I learned, until you are there, you can’t truly anticipate the reality and rewards of Camp Courage.
On Sunday, April 29, I had the pleasure of attending the annual Mitzvah Day program at Congregation Beth Tikvah in Hoffman Estates, one of more than 400 communities served by JourneyCare. A Mitzvah Day is a day in Jewish communities when congregation members come together to perform a wide variety of deeds that benefit their community. Many congregations in our service area have these annual programs.
The focus of this particular Mitzvah Day was inspired by a Jewish Care Services patient we cared for last year in our Marshak Family Hospice CareCenter in Glenview.
The buzzwords “comfort care” are creating questions since the Bush family announced that former First Lady Barbara Bush, 92, will no longer seek medical services. Bush lives with illnesses that include congestive heart failure and chronic obstructive pulmonary disease, or COPD.
Instead, the family announced that Mrs. Bush is now receiving “comfort care” at her Houston home and news outlets report she is spending time with her husband, former President George H.W. Bush, and her sons, former President George W. Bush and former Florida Gov. Jeb Bush.
I was honored to speak at JourneyCare’s Decades Dance on Saturday, March 10. In addition to the fun ’60s theme, music and auctions, the event raised money for JourneyCare’s All About Kids pediatric program – a program close to my heart.
Our daughter, Sadie Elizabeth, was born on April 29, 2010, after an uneventful pregnancy. I say “uneventful,” because I experienced the typical pregnancy symptoms – tiredness, discomfort, slight nausea, cravings, etc. But nothing could have prepared me for her diagnosis.
Often-ignored but totally necessary, self-care is any action or behavior that helps us avoid triggering health problems and benefits us by improving our mental and physical health through better self-esteem, less stress and overall well-being. These behaviors help provide balance in an increasingly over-stimulating world. Self-care makes up an essential part of a healthy lifestyle that keeps us healthy, happy, and more in-tune with our minds and bodies.
Experts suggest we neglect self-care because it can be tough to make healthy changes and manage stress in better ways. Self-care is also sometimes associated with selfishness and lazy, over-indulgent behavior. This might make us feel guilty for thinking we need to take a break from our lives to do something that, simply put, makes us feel better.
I will always remember my hospice patient’s dog, Jack. Jack was a medium-sized, furry mutt, with all the friendliness of a well-loved and trained dog. My patient was a man who was deeply loved by family and friends... and his dog, Jack.
As the patient was dying, Jack was lying awake with his head on his front legs, under the patient’s bed. The family told me Jack had been there over 24 hours and was refusing to come out to eat or drink. Jack and his human friend were inseparable in life. And Jack stayed there, under the patient’s bed, until the funeral home arrived.
His wife died. He is now a single parent to two young children. His daughter comforts him. She hugs him tight: “It’s okay, daddy.”
Other families in the room acknowledge, they are just like us.
Just like us, this family lost someone very dear and special to them. Just like us, they grieve. Just like us, they journey forward.