Taveon Woodward, a very special boy in JourneyCare’s All About Kids pediatric program, just turned 9 and is living with rhabdoid pleuropulmonary blastoma – his third relapse since he was first diagnosed at 3 years old. At the start of this year, the doctors gave him the “all clear,” but by April they told him it was “back with a vengeance." This time, though, his only treatment option is palliative chemotherapy to treat his symptoms.
When Social Worker Jennifer Leahy Junas and I admitted Taveon, we knew his birthday was close and could be his last. We asked how he would like to celebrate this year, and he shared that he'd love to go roller skating. Oh boy! With that response my mind went a’whirling to my own childhood …
Camp Courage is JourneyCare’s bereavement camp for kids who are grieving the loss of a loved one.
Twenty-five years ago, my dad's cancer returned. I was 9 years old at the time and didn't fully understand the magnitude of the situation. He declined quickly, and only four months after his diagnosis, he died. This trauma still lives with me today, but I have been able to live with it thanks to the support I received in the aftermath.
The most significant boost I received at that time was from JourneyCare. My mom immediately enrolled our family in their monthly grief support groups, and it was there that I learned that I wasn't alone in this world. While my experiences were unique — like anyone else's — I took comfort in knowing that there were other children that would be going on a similar life journey to my own.
Losing a loved one is difficult for anyone. For children, grief is experienced differently and every child grieves in his or her own way. As an adult, you serve as a role model to the children and teenagers in your life. By encouraging them to express their feelings, you can help them build healthy coping skills through the grieving process and for the future.
Learn how you can help the children in your life through the grieving process with these helpful tips in mind:
“What can I do to help?”
That question often weighs on the minds of the parents or guardians of a grieving child.
Some children instinctually express their emotions through verbalization, art, music and play. Other children need guidance on how to express feelings of grief and loss.
“It is helpful to children when the adults in their lives provide opportunities to acknowledge the grief everyone is feeling,” The National Alliance for Grieving Children states. “It is also helpful when children can gather with peers grieving similar situations.”
Bereavement camp is a place where children can meet other kids who are facing grief, and are given the opportunity to bond and process loss with them.
Camp Courage is JourneyCare’s bereavement camp and activities for children and teens, ages 6-13, who are grieving the loss of a loved one.
When I took it on, I assumed being a Camp Courage volunteer would be tough. I knew that spending a week with kids ages 6-13 who had recently experienced a significant death would challenge my emotional wherewithal. Given my career working with the juvenile justice system and the skills I developed in that role, I decided I could handle it. But I learned, until you are there, you can’t truly anticipate the reality and rewards of Camp Courage.
I was honored to speak at JourneyCare’s Decades Dance on Saturday, March 10. In addition to the fun ’60s theme, music and auctions, the event raised money for JourneyCare’s All About Kids pediatric program – a program close to my heart.
Our daughter, Sadie Elizabeth, was born on April 29, 2010, after an uneventful pregnancy. I say “uneventful,” because I experienced the typical pregnancy symptoms – tiredness, discomfort, slight nausea, cravings, etc. But nothing could have prepared me for her diagnosis.
His wife died. He is now a single parent to two young children. His daughter comforts him. She hugs him tight: “It’s okay, daddy.”
Other families in the room acknowledge, they are just like us.
Just like us, this family lost someone very dear and special to them. Just like us, they grieve. Just like us, they journey forward.
I visited a recently admitted pediatric patient, 17-year-old Lucía. Here from Mexico City for treatment in Chicago, she was later discharged to hospice in her aunt’s home in a nearby Illinois town. In reviewing the most recent notes for this young cancer patient, I was upset to find that her parents were not here with her. Her dad had died, as well as one of her brothers, and her mom was recently hospitalized. Make-A-Wish Foundation was trying to get her mom here on a temporary visa to visit.
But when I arrived, a large support group of well-dressed cousins and aunties were there. They were all in a celebratory mood. They had brought home-cooked food, and were smiling, friendly and happy. And her wonderful brother, Alonso, who was also her best friend, was by her side.
Yeimy, a beautiful mother of three, lost her hair to chemotherapy. By the time she came to our Pepper Family Hospice CareCenter in Barrington, her hair had started to grow back but was still very short. As a show of support, seven of her family members buzz cut their hair as short as hers, including her 16-year-old daughter Maggy. They did this en masse on a Saturday afternoon at the Barrington CareCenter.
Yeimy's husband was hesitant about having Wendy, their 9-year-old daughter, cut her hair quite that short. Wendy was unhappy about this, but began to search for another inspiration.
Camp Courage is JourneyCare's annual grief support camp that helps children and teens cope with the death of a loved one while having summer fun. Entirely supported by charitable donations, the program helps campers deal with their loss while they enjoy art, music, sports and other activities with friends.
I cannot begin to explain how remarkable Camp Courage is for everyone involved in just a quick blog post. My intention here is to convey what Camp Courage meant to me as a camp counselor this summer, and what I hope the kids can take from camp to use in the future to help cope with the loss of a loved one. The most wonderful thing I observed was how these kids recovered the hope and confidence they may have initially lost along with their loved one.