I've found that there’s no better way to reminisce with our Jewish patients than talking about the major holidays and the memories associated with them. Beginning at sundown on April 10, through April 18 of this year, we will be celebrating the Jewish holiday of Passover, also known as the Festival of Freedom.
The eight-day holiday commemorates the emancipation of the Jews from slavery in ancient Egypt. The Passover Seder is our traditional and family oriented ritual-packed feast. As we prepare for the upcoming holiday, I relish the old traditional songs I get to sing with our hospice patients.
Part of good communication skills is the ability to listen. It's especially true in my role as a hospice social worker.
Being skilled in communication and assessment is vital to my work. These skills allow me to best identify the challenges my patients and their families face, and ensure I’m able to meet their needs.
I may find a patient’s wife tearful as she recognizes the decline in her husband. Sitting with her, I'll place my hand over hers when she squeezes tightly. The act of joining her for a cup of tea and normalizing these recent changes is something I can do to provide her comfort.
Everyone has heard the words “social work” and “social worker," but do you know what they really mean? When I was growing up, I thought social workers were men and women who wanted to devote their lives working in underprivileged countries helping poor people enrich their lives.
Well, I grew up and learned I wasn’t completely wrong. And after 20 plus years as a social worker, I continue to learn everyday what social work and being a social worker truly mean.
As a hospice social worker I wear many hats. I am a noun, verb, adverb and adjective. I'm a counselor, confidante, advocate, researcher and resource. I'm a cheerleader, motivator, listener, party planner, wedding coordinator and dream maker.
Mainly, I am a humbled and privileged, invited guest into the lives of patients and families who I've been honored to know over the years. Here are a few of them:
Hospice is not a place. It is a philosophy of care.
Hospice focuses on providing compassionate care to patients with terminal illnesses once curative treatment has ended.
Hospice happens anywhere the patient calls home, from the house they grew old in, or a new place they have come to call home — be it in assisted living, a nursing home, a residential facility or a hospice carecenter.
Choosing hospice care doesn’t mean giving up hope — you are in fact redefining it.
While those who choose hospice accept that further medical treatment almost certainly won't help them, they also choose to redirect their hope into mending and restoring relationships, spending quality time with those they love, and finding peace and comfort.
“I just want her to be comfortable.”
“How much longer will she be with us?”
“God is happy that my brother is with Him now. He is giving my brother a hug and is glad my brother is there to make Him laugh.”
Working in pediatic palliative and hospice care, I've seen that it can be easy for siblings to “get lost” amongst all that is happening when they have a brother or sister with life-threatening illness.
Given the understandably consuming emotions and frequently busy environment, siblings are often left to understand and process what has been experienced or witnessed on their own.
Sympathetic adults often feel at a loss regarding how to disclose a sibling’s illness, or anticipated death, or how to prepare a sibling for such a death — a death that they themselves are still trying to grasp and reconcile.
Susan was overwhelmed. Her job allowed her to work from home to care for her mother, Adeline, but juggling work tasks with her mother’s increasing need for care proved challenging beyond what she thought was possible.
Adeline had dementia and colon cancer. She had been a school teacher and in between moments of agitation she still had a warm, friendly tone to her now nonsensical speech.
As a music therapist for Adeline, I would visit her home, and Susan was always quick to apologize as their three large, joyful rescue dogs tripped over each other to greet me at the door, or tried to vocalize along with our music. Even with a caregiver eight hours a day and support from our hospice staff, Susan was hurried and anxious.
Susan grieved her mother’s cognitive decline. Growing up, she had admired her mother’s intelligence and was taught to value her own. Now that Adeline could no longer answer simple questions, Susan felt her mom was "already gone." She spoke of rare moments of increased lucidity like visits from a ghost — each time her mother was able to orient to reality and speak with her, she knew it may be the last time.
I’ve worked in the healthcare industry my entire professional life.
During my last year at Northern Illinois University, I completed an internship at a local nursing home and after graduation, became the director of social services there. This experience truly allowed me to foster my love of helping others and making a difference. Through the years, I found where my strengths lie in service to others. I achieved certification and received my Nursing Home Administrator’s License, quickly accepting an administrator position locally.
Shortly thereafter, my mother was diagnosed with a terminal illness.
A few years ago, while watching 'Law & Order,' I thought, “I’d make a terrible witness; I never notice anything.” So I decided to pay closer attention to my surroundings, at least while walking my dogs in the woods. This would help my art, too, I felt.
At first, I noticed trees, discovering that, for me, trees with broken or damaged bark offered more interesting compositions. But I gradually realized that a scarred trunk and missing bark exposed the beating heart of the living creature, and its vulnerability. I began to feel compassion and affection for the trees in the forest preserve.
Hospice therapy pets, like the sweet miniature therapy horses that visit our Hospice CareCenters, bring love, laughter and comforting companionship to those on the end-of-life journey. Visits from these furry volunteers and their handlers provide patients with a welcome distraction from illness and help them feel more relaxed.
Becoming a volunteer for JourneyCare, doing pet therapy, has been a high point in my life.