"When we are no longer able to change a situation, we are challenged to change ourselves." - Viktor Frankel
My husband Victor Morris and I have years of experience working in special education, community mental health, and wellness. However, most of our experience on the topic of understanding caregiver stress comes from personal experiences. Early in life, we both witnessed loved ones in caregiver roles as Vic's mother was seriously ill when he was in grade school, and my sister was born with medical issues and developmental disabilities. Those early experiences were profound and made us who we are today. But our caregiver experiences didn't end there, and we both pursued professions which sometimes could tax us and deplete our energies.
We understand very well that parenting (especially children with special needs), taking care of ailing loved ones or working in care giving professions can sometimes cause us to forget our own self-care.
My career as a physician has paired me with many facets of medicine. I have explored private family practice, treated patients in nursing homes and even treated infants. Each of these are wonderful and worthy specialties, but I never felt the visceral connection to them that I feel with hospice and palliative care.
This work is a calling. And as JourneyCare celebrates our physicians this month, I celebrate my colleagues who also feel called to serve patients facing serious illness or the end of life.
Camp Courage is JourneyCare's annual grief support camp that helps children and teens cope with the death of a loved one while having summer fun. Entirely supported by charitable donations, the program helps campers deal with their loss while they enjoy art, music, sports and other activities with friends.
I cannot begin to explain how remarkable Camp Courage is for everyone involved in just a quick blog post. My intention here is to convey what Camp Courage meant to me as a camp counselor this summer, and what I hope the kids can take from camp to use in the future to help cope with the loss of a loved one. The most wonderful thing I observed was how these kids recovered the hope and confidence they may have initially lost along with their loved one.
I joined the JourneyCare Foundation five weeks ago, helping the Foundation raise funds to cover uncompensated care. Because I’m not a clinician and I don’t work in any of our other patient or family facing departments, I quickly realized that in order to be most effective, I needed to find a way to keep patients front and center in my mind and never lose sight of my “why” for being at JourneyCare. I brought in a photo of my Nana who passed away eight years ago after seven years of round-the-clock care by my family. We didn’t know about hospice or palliative care services. I joined JourneyCare because I want to help ensure other families don't go through such a physically and emotionally painful ordeal alone.
In my short time at JourneyCare, I’ve discovered that we go over and above to provide extra care and services that patients and their families don’t even realize they need or want, but which help provide comfort. One of these extras has been particularly impactful on me.