Everyone has heard the words “social work” and “social worker," but do you know what they really mean? When I was growing up, I thought social workers were men and women who wanted to devote their lives working in underprivileged countries helping poor people enrich their lives.
Well, I grew up and learned I wasn’t completely wrong. And after 20 plus years as a social worker, I continue to learn everyday what social work and being a social worker truly mean.
As a hospice social worker I wear many hats. I am a noun, verb, adverb and adjective. I'm a counselor, confidante, advocate, researcher and resource. I'm a cheerleader, motivator, listener, party planner, wedding coordinator and dream maker.
Mainly, I am a humbled and privileged, invited guest into the lives of patients and families who I've been honored to know over the years. Here are a few of them:
Hospice is not a place. It is a philosophy of care.
Hospice focuses on providing compassionate care to patients with terminal illnesses once curative treatment has ended.
Hospice happens anywhere the patient calls home, from the house they grew old in, or a new place they have come to call home — be it in assisted living, a nursing home, a residential facility or a hospice carecenter.
Choosing hospice care doesn’t mean giving up hope — you are in fact redefining it.
While those who choose hospice accept that further medical treatment almost certainly won't help them, they also choose to redirect their hope into mending and restoring relationships, spending quality time with those they love, and finding peace and comfort.
“I just want her to be comfortable.”
“How much longer will she be with us?”
“God is happy that my brother is with Him now. He is giving my brother a hug and is glad my brother is there to make Him laugh.”
Working in pediatic palliative and hospice care, I've seen that it can be easy for siblings to “get lost” amongst all that is happening when they have a brother or sister with life-threatening illness.
Given the understandably consuming emotions and frequently busy environment, siblings are often left to understand and process what has been experienced or witnessed on their own.
Sympathetic adults often feel at a loss regarding how to disclose a sibling’s illness, or anticipated death, or how to prepare a sibling for such a death — a death that they themselves are still trying to grasp and reconcile.