The buzzwords “comfort care” are creating questions since the Bush family announced that former First Lady Barbara Bush, 92, will no longer seek medical services. Bush lives with illnesses that include congestive heart failure and chronic obstructive pulmonary disease, or COPD.
Instead, the family announced that Mrs. Bush is now receiving “comfort care” at her Houston home and news outlets report she is spending time with her husband, former President George H.W. Bush, and her sons, former President George W. Bush and former Florida Gov. Jeb Bush.
Advance Care Planning was the focus of JourneyCare’s Life is a Journey education event that took place on April 17. This cause was a passion of mine even before I headed out on my first 'Ride for 3 Reasons' in 2001. After I completed three solo cross-country bike rides, I passed the torch to my fellow Barrington resident 17-year-old Jan Gierlach last year. The trip we had in common took us more than 3,200 miles from San Diego to St. Augustine, Florida to raise awareness and funds to benefit three causes dear to our hearts. One of these is hospice. Part of the proceeds has benefitted JourneyCare and is helping to fund the very special 'Life is a Journey' event this month.
I am often mindful of the quote by Albert Einstein, “I have no special talents, I am only passionately curious.” I feel that there is a driving force inside of me to help others, to relieve suffering, not as a noble endeavor to call attention to myself, but because I have been given so much. I want to use my talents and opportunities to help relieve the burdens of others. This is what I strive to do.
What is a memorable patient story for me? My husband’s dear friend of many years was diagnosed with a rapidly progressing form of ALS at age 62. He and his wife were part of a group of friends who had stayed in touch for many years, through many changes. His daughters were my children’s babysitters.
This is my 29th year as a hospice social worker, and my 26th year with JourneyCare and its legacy hospices. I wish I had a dime for everyone who has ever said to me, “Gee, your work must be so depressing …” I would have a truckload of money and I might have retired by now! But I think it’s better this way: I love what I do, I have never found it depressing and I’m in no hurry to retire from it.
Being a hospice social worker demands a very full toolkit of both clinical and non-clinical skills. Sometimes people have misconceptions about what a social worker is and does, so when I walk into a patient’s home for the first time, I am very conscious of the need to quickly establish a rapport so I can explain my role on the team and patients and their families begin to share freely with me.