The thing I really like about my job is the opportunity to work in different settings and to meet a variety of people from all different backgrounds. Taking care of people at the end of life gives me a chance to make them feel good, almost like they felt when they were well enough to do things for themselves. Even a simple shave makes a man feel refreshed, better, and more comfortable.
As hospice care providers, we are often caring for people who are in pain or who cannot get comfortable and this is the challenge of this job. We need to consider options to minimize their distress. Some approaches that might work in other settings or for other people cannot always be used, and we need to be resourceful in how we assist these patients. All of us, in whatever discipline, think about this and do our part to help our patients find comfort in small and big ways.
Through my work, I have been especially surprised to meet new people or reconnect with people I've met or cared for in other settings. I find that the world seems increasingly smaller and I am connected with more people than I would have ever known through the care that I have provided. I never know who I might run into again.
My late husband, Tom, loved football. While Tom liked baseball―he was a die-hard Chicago Cubs fan―by August, the Cubs were almost always non-contenders, so it was time for the football season to begin. He really loved the Bears. In fact, according to him, the biggest fight in our marriage related to me cheering for the Packers and him cheering for the Bears. After that fight, I realized I loved him more than the Packers, so I became a Bears fan, too. And even though Tom has been dead for over five years, I still root for the Bears―much to the dismay of my Packer fan family.
CampCare is a grief support camp for children and teens who have lost a loved one. This past summer, campers experienced camp in very meaningful ways and created memories that they will carry with them always. These experiences have had a profound influence on our campers.
The patient's breathing was labored and his forehead was warm and clammy when I arrived. His pulse was present, but irregular and quick. He opened his eyes widely and wildly in response to having a pulse ox placed on his finger. The facility staff was trying to address his respiratory distress, and the hospice RN came in to help. Not far behind the nurse was one of the patient's children. Through all of this, the musical prescription began—first a cappella, and then, after the patient's son arrived, the harp and voice together helped ease the patient's respirations.