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Forever Grateful for Hospice

My family was thrown into a crisis when my mother suddenly collapsed at home. She experienced multiple, catastrophic health events that lasted for more than a year. She ended up in a viscous cycle of recurring pain, hospitalizations, surgeries, complications, re-hospitalizations, infections and – just when we thought it couldn’t get worse – amputations to her lower extremities.

We ended up in just about every setting of care in Chicago, none of which could address all her needs. At one point, we brought her home with 24-hour care and were outraged to learn we had to pay $15,000 per month out of pocket because Medicare didn’t cover it.

We wished we would have been more educated and better prepared.

Music Speaks

Music Speaks

Music therapists use a range of musical techniques to help hospice patients relax, express feelings and recall significant experiences from their lives. Using both instruments and voice, music therapists encourage pateints to sing along with them or will help patients write songs to leave as a legacy for the people they love.

I don’t think I will ever forget one of my first experiences working as a full-time music therapist in hospice. Fresh out of an internship and living in a new city I realized I had some growing to do. I can remember my first couple of visits with one gentleman in particular. At the time, I was referred to help him with anxiety and processing of his illness. Strong, independent, and very open about what he wanted and didn’t, he was of course a little hesitant of the young woman walking in with a guitar ready to sing — wanting to know exactly how I could help him.

Angels for Rebecca

Angels for Rebecca

Drawing on their musical and clinical palliative care training, music-thanatologists use harp and voice to address physical, emotional and spiritual suffering at the end of life. Using music prescriptively, they vary the tempo and tone of music to respond to changes occurring in a patient's body, like a slowing of pulse and breathing, in the final hours of life. During their visits — music vigils — they alternate sound and silence to help patients and loved ones relax and rest.

Rebecca is actively dying. Her breaths have become agonal, and her skin is gray. Her cousin and I arrive at the same time, and together we sit by her side, offering her comfort.

Thankful in Body and Mind

Thankful in Body and Mind

Massage therapy has proven to be very beneficial for hospice patients and can lessen the need for pharmaceutical intervention. Massage therapy can provide immediate relief of pain, discomfort and anxiety caused by symptoms such as contractions, stiffness, shortness of breath, nausea, cramping and muscle spasms while simultaneously increasing feelings of peace and comfort. The simple act of human touch is one of the most ancient and effective ways to relieve discomfort in the body. Providing massage to the dying reinforces the wholeness of the individual regardless of what is happening to their body.

As a massage therapist for hospice patients, I went to see a woman with cancer. She was a published poet, very creative and very insightful, and the more I got to know her the more remarkable I felt she was. 

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